There is a problem that has been on my mind for a while now. Don't worry its not life-threatening.
It's just... I need a new name for my Powermilk.
Don't laugh at me, it's a real-life problem.
I call it Powermilk, in the blog, because that's what I introduced it as. I kept calling it that to remain consistent. Powermilk is kinda... I don't know... Do you remember that childhood nickname your parents called you growing up but whenever they would call you it in public years later you'd get the weirdest looks? That's what "Powermilk" is the nickname that earns you weird looks.
So my sister and I compiled a list of names we have used on occasion or names that people have suggested.
-My medicine
-Steriods
-Shake
-Phenylade
- Incomplete Protein Powder
-Milk
-Magic milk
-Formula
-Drink
None of them "stick". I grew up with Powermilk, but I was teased (not badly, my childhood was a happy one) back in elementary school. So I started calling it my formula, but people kept mentioning how it made them think of baby formula. :-/.
My roommate calls my Powermilk, my "magic milk". And my sister calls her Powermilk... Steriods.
What would you/ do you call it? I want to know. Who knows, Maybe one of your ideas will stick.
Tuesday, October 9, 2012
Sunday, September 30, 2012
A Cup Half Full
A long time ago I agreed to share my PKU pros list. Well, I'm finally getting around to it! I know there will be things I haven't thought of so if anyone thinks of any just comment below and we'll add it. :). I'm positive this list will help other PKU'ers who are struggling to look a the bright side. It helped me.
PKU Pros:
1. You have an army of doctors monitoring your health. So if you ever have a tumor or a virus they'll catch it pretty early on.
2. You're healthier. Think about it, have you ever seen an obese PKU'er? Didn't think so.
3. You don't have to worry about carbs... Just PHE. ;)
4. You can still live life and interact with people around you.
5. You are really good with scales. (just in case you wanted to be chemist)
6. You can cook, and more importantly mess with recipes to make food you can have.
7. You always get to bring home lunches, and don't have to deal with the "mystery meat".
8. You learn self-control.
9. You can refuse weird looking foods, blaming it on your diet.
10. You aren't alone. There are others who have it and understand everything.
I had fun with this list. I hope it brings a smile to you're face because as I was typing it I was laughing hard. My roommate probably thinks I'm psycho now. Sometimes you've just got to laugh at life. There are serious ones along with the funny ones, so that if you're having a blah day and funny justn't helping... The serious ones will remind you there are some good things about PKU.
Like I said earlier, add to this list. Have fun with it! :). See you later!
PKU Pros:
1. You have an army of doctors monitoring your health. So if you ever have a tumor or a virus they'll catch it pretty early on.
2. You're healthier. Think about it, have you ever seen an obese PKU'er? Didn't think so.
3. You don't have to worry about carbs... Just PHE. ;)
4. You can still live life and interact with people around you.
5. You are really good with scales. (just in case you wanted to be chemist)
6. You can cook, and more importantly mess with recipes to make food you can have.
7. You always get to bring home lunches, and don't have to deal with the "mystery meat".
8. You learn self-control.
9. You can refuse weird looking foods, blaming it on your diet.
10. You aren't alone. There are others who have it and understand everything.
I had fun with this list. I hope it brings a smile to you're face because as I was typing it I was laughing hard. My roommate probably thinks I'm psycho now. Sometimes you've just got to laugh at life. There are serious ones along with the funny ones, so that if you're having a blah day and funny justn't helping... The serious ones will remind you there are some good things about PKU.
Like I said earlier, add to this list. Have fun with it! :). See you later!
Sunday, September 23, 2012
College HO!
College is even busier than I thought.
Yes that's right, this blogger is officially a college student.
It's crazy here. And living on diet is both harder and easier than it was at home.
Easier Because:
College is harder and easier than I thought it would be. I'm living on campus with a kitchen right now. So I have a place to cook meals. Some on-campus places don't have kitchens. They have cafeterias that serve your food. Once in a while that would be nice... when I don't feel like cooking or I'm too busy to make a lunch. But the selection for PKU'ers in the Cafeteria is small. I'd have to have the same things day after day, and that would get annoying fast.
I've heard of people talking to the managers and getting them to store and cook PKU foods for them. I would just rather have a kitchen. It seems like less of a hassle. But it's another idea for those looking for some ideas.
College. It's crazy. I still can't believe I'm here. :)
Yes that's right, this blogger is officially a college student.
It's crazy here. And living on diet is both harder and easier than it was at home.
Easier Because:
- I'm doing my own shopping and I can plan what I buy according to what I eat.
- I have a bigger selection since everything I buy is PKU-proof.
- I find Powermilk an easy snack that gives me energy so I drink it more.
- I have to find the time to cook a meal and eat it!
- I have to find time to make the 1/2 bus ride to the nearest grocery store.
- This is the biggest one... It seems everywhere I go they try to feed us. At every event their serving some type of refreshment (especially ice cream) and more often than not I can't have it.
College is harder and easier than I thought it would be. I'm living on campus with a kitchen right now. So I have a place to cook meals. Some on-campus places don't have kitchens. They have cafeterias that serve your food. Once in a while that would be nice... when I don't feel like cooking or I'm too busy to make a lunch. But the selection for PKU'ers in the Cafeteria is small. I'd have to have the same things day after day, and that would get annoying fast.
I've heard of people talking to the managers and getting them to store and cook PKU foods for them. I would just rather have a kitchen. It seems like less of a hassle. But it's another idea for those looking for some ideas.
College. It's crazy. I still can't believe I'm here. :)
Saturday, July 14, 2012
PKU Pride
Camp PHEver was last week and unfortunately I wasn't able to go. (I had other things I needed to do) But I was able to follow posts and look at pictures that my friends posted throughout the week. Pictures showing them walk on the really tall ropes course, having a tea party, hanging out with our cabin mascot. It was fun looking at those pictures.
Today when I was looking at the newest bunch of pics I realized something. PKU kids can be strong. They can be smart. They can be beautiful/handsome. PKU kids can grow and learn just like other kids. But only with the help of their diet. Without following that they miss so much.
At Camp PHEver there are COW's (Crush Of the Week), friendships formed, inside jokes, and pranks pulled. It's just like a typical summer camp... with chefs cooking really tasty foods, and pickles (or Popsicles) served as an after swimming food, and formula suicide drinks. :)
The only thing PKU'ers can't do is eat a lot of proteins. Which is okay. :) It makes us healthy and strong.
Just looking at those pictures reestablished my PKU Pride. It reminded me that I'm not the only one with it. And there are others who are doing just fine. I can do it.
I've also decided that having friends that are PKU (when you have PKU) is important. Especially friends in your age group. You need that support, you need to know that there are others out there with PKU. I'm lucky to have a sister close to my age who has PKU. Whenever I go to a PKU activity in my area I'm the oldest PKU'er there, all the others are little kids. Which makes my sister all the more valuable to me, because she can relate to me. :) Thanks sis.
Anyways I just wanted to share that thought with everyone. Sorry if it's a bit jumbled. Bye!
Today when I was looking at the newest bunch of pics I realized something. PKU kids can be strong. They can be smart. They can be beautiful/handsome. PKU kids can grow and learn just like other kids. But only with the help of their diet. Without following that they miss so much.
At Camp PHEver there are COW's (Crush Of the Week), friendships formed, inside jokes, and pranks pulled. It's just like a typical summer camp... with chefs cooking really tasty foods, and pickles (or Popsicles) served as an after swimming food, and formula suicide drinks. :)
The only thing PKU'ers can't do is eat a lot of proteins. Which is okay. :) It makes us healthy and strong.
Just looking at those pictures reestablished my PKU Pride. It reminded me that I'm not the only one with it. And there are others who are doing just fine. I can do it.
I've also decided that having friends that are PKU (when you have PKU) is important. Especially friends in your age group. You need that support, you need to know that there are others out there with PKU. I'm lucky to have a sister close to my age who has PKU. Whenever I go to a PKU activity in my area I'm the oldest PKU'er there, all the others are little kids. Which makes my sister all the more valuable to me, because she can relate to me. :) Thanks sis.
Anyways I just wanted to share that thought with everyone. Sorry if it's a bit jumbled. Bye!
Friday, May 4, 2012
Restaurant Review #3: A SubZero Climate
(I'm just going to ignore the huge gap of not writing and continue on like I've been on schedule this whole time)
The other day I went to a magical place where they served delicious ice cream. This place was called SubZero.
When you walk in it's this snazzy little ice cream shop. Nothing special. Then you see the MENU! For PKU'ers like me it's a dream. First you pick out your BASE... like Rice Milk. :) Then you pick out the flavor... and BECAUSE of the rice milk base you can have ANY of the flavors! Lastly you can pick out the "extra things" to put in it, like twix, brownies, dark chocolate... It's like someone created this shop so PKU'ers can have a choice on what ice cream flavor to have!
No I'm not exaggerating. Other ice cream shops (Baskin Robbins, Coldstone, Maggie Moos...) only have 1 or 2 choices for PKU'ers. On the ice cream front we can have Sherbet, Sorbet, Ices, Coconut Milk (it's a fruit... really.), or RICE MILK!
On the PKU friendly scale this place is full 10 out of 10!
The ice cream there is made in front of you too! What they do is they pour the base and the flavor together, and freeze it (SubZero!) with Liquid Nitrogen. While blowing the Liquid Nitrogen out of tube onto the ice cream they stir. After they are done they stir some more, adding in the extras and mixing it in. TADAA!! It's done! (Don't worry it's perfectly safe to eat)
I have a HARD time deciding what to try because there are SO many choices! My favorite so far has been Carmel Rice Milk Ice Cream with Twix in it. And if you have a hard time deciding what to choose and don't want to hold up the line that has magically grown behind you (because somehow it always happens to me) you can visit subzeroicecream.com and decide ahead of time.
You can also see the real chemistry of using liquid nitrogen on ice cream. I didn't explain it, and it's a fascinating read.
So real fast: SubZero is an awesome PKU friendly ice cream boutique! That's my message today. See you whenever I see you. (Which may be a couple weeks because I have a couple of Huge tests coming up next week and I need to study!)
The other day I went to a magical place where they served delicious ice cream. This place was called SubZero.
When you walk in it's this snazzy little ice cream shop. Nothing special. Then you see the MENU! For PKU'ers like me it's a dream. First you pick out your BASE... like Rice Milk. :) Then you pick out the flavor... and BECAUSE of the rice milk base you can have ANY of the flavors! Lastly you can pick out the "extra things" to put in it, like twix, brownies, dark chocolate... It's like someone created this shop so PKU'ers can have a choice on what ice cream flavor to have!
No I'm not exaggerating. Other ice cream shops (Baskin Robbins, Coldstone, Maggie Moos...) only have 1 or 2 choices for PKU'ers. On the ice cream front we can have Sherbet, Sorbet, Ices, Coconut Milk (it's a fruit... really.), or RICE MILK!
On the PKU friendly scale this place is full 10 out of 10!
The ice cream there is made in front of you too! What they do is they pour the base and the flavor together, and freeze it (SubZero!) with Liquid Nitrogen. While blowing the Liquid Nitrogen out of tube onto the ice cream they stir. After they are done they stir some more, adding in the extras and mixing it in. TADAA!! It's done! (Don't worry it's perfectly safe to eat)
I have a HARD time deciding what to try because there are SO many choices! My favorite so far has been Carmel Rice Milk Ice Cream with Twix in it. And if you have a hard time deciding what to choose and don't want to hold up the line that has magically grown behind you (because somehow it always happens to me) you can visit subzeroicecream.com and decide ahead of time.
You can also see the real chemistry of using liquid nitrogen on ice cream. I didn't explain it, and it's a fascinating read.
So real fast: SubZero is an awesome PKU friendly ice cream boutique! That's my message today. See you whenever I see you. (Which may be a couple weeks because I have a couple of Huge tests coming up next week and I need to study!)
Thursday, March 22, 2012
Excuses, Notes, and Foreshadowing.. Oh MY!
I'm sorry it took so long. I have a bunch of excuses: the internet disconnected (again) from my computer, I got sick, it's the end of the semester... That's pretty much it to be honest. I'm sorry that I kept you waiting.
I didn't bring my notes from the conference with me (I'm using a public computer because mine is still offline). So here are a few things I DID remember.
I didn't bring my notes from the conference with me (I'm using a public computer because mine is still offline). So here are a few things I DID remember.
- They are going to have a Utah PKU Camp this summer! :) Can't say if I'm going to go yet... I'm kind of on the borderline for ages. Kids up to 18 years old. It's going to be on June 15-16th. So if you want to go contact IPAD. (That's the Parent Group in our area) I'm happy that they are starting one up!!!!
- Someone talked about getting all our nutrients. Did you know to jump-start your metabolism for the day you need to eat breakfast sometime in the first 1/2 hr. you're awake? I didn't.
- You know how sometimes you get into a rut and eat the same things everyday? You are busy so you grab your "fast meal"... everyday? I know I do it. But it was mentioned that when we do this we aren't getting a lot of nutrients. There are some things that aren't in formula. You have to eat a variety of food to get it. You could cook lots when you do cook and eat leftovers when your busy. I even received a free cookbook with some pretty amazing recipes!
Later on in the conference we split into groups. People with PKU (most were adults in fact, there were 4 teens there including me!) But we were able to complain to each other and it made us feel better to know we weren't the only ones who hated that. But later we made a list of things we LIKE about PKU it was pretty interesting to see it. There ARE some good things about PKU. :) (That was the Foreshadowing part.) ;)
Have a great day! I'll try to fix my computer so I can post easier.
Saturday, March 10, 2012
Really, Really Quick!
So here's the update with flavor straws... they taste good in bettermilk! :)
And I'm leaving in 1.5 hours for the Utah PKU Conference. I'm excited to go, I wanted to go to the one in Colorado last year but it was during the school year and I can't just drop everything to go to Colorado. Sigh. I have high hopes for it. It's going to last all day but I'm taking my notebook so I can post the highlights of it ASAP. There's going to be a PKU lunch. (I love the PKU buffets they always have) And I hope that I meet some PKU Mountain Region teen-friends.
*When 1 out of every 25,000 kids are born with PKU, friends tend to be scarce. I'm lucky to have my sister who also has it. :)*
Okay I told you it would be quick. And so this is my posting and running to get ready. :)
And I'm leaving in 1.5 hours for the Utah PKU Conference. I'm excited to go, I wanted to go to the one in Colorado last year but it was during the school year and I can't just drop everything to go to Colorado. Sigh. I have high hopes for it. It's going to last all day but I'm taking my notebook so I can post the highlights of it ASAP. There's going to be a PKU lunch. (I love the PKU buffets they always have) And I hope that I meet some PKU Mountain Region teen-friends.
*When 1 out of every 25,000 kids are born with PKU, friends tend to be scarce. I'm lucky to have my sister who also has it. :)*
Okay I told you it would be quick. And so this is my posting and running to get ready. :)
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