Thursday, March 22, 2012

Excuses, Notes, and Foreshadowing.. Oh MY!

I'm sorry it took so long. I have a bunch of excuses: the internet disconnected (again) from my computer, I got sick, it's the end of the semester... That's pretty much it to be honest. I'm sorry that I kept you waiting.

I didn't bring my notes from the conference with me (I'm using a public computer because mine is still offline). So here are a few things I DID remember.

  1. They are going to have a Utah PKU Camp this summer! :) Can't say if I'm going to go yet... I'm kind of on the borderline for ages. Kids up to 18 years old. It's going to be on June 15-16th. So if you want to go contact IPAD. (That's the Parent Group in our area) I'm happy that they are starting one up!!!!
  2. Someone talked about getting all our nutrients. Did you know to jump-start your metabolism for the day you need to eat breakfast sometime in the first 1/2 hr. you're awake? I didn't.
  3. You know how sometimes you get into a rut and eat the same things everyday? You are busy so you grab your "fast meal"... everyday? I know I do it. But it was mentioned that when we do this we aren't getting a lot of nutrients. There are some things that aren't in formula. You have to eat a variety of food to get it. You could cook lots when you do cook and eat leftovers when your busy. I even received a free cookbook with some pretty amazing recipes!


Later on in the conference we split into groups. People with PKU (most were adults in fact, there were 4 teens there including me!) But we were able to complain to each other and it made us feel better to know we weren't the only ones who hated that. But later we made a list of things we LIKE about PKU it was pretty interesting to see it. There ARE some good things about PKU. :) (That was the Foreshadowing part.) ;)


Have a great day! I'll try to fix my computer so I can post easier.

Saturday, March 10, 2012

Really, Really Quick!

So here's the update with flavor straws... they taste good in bettermilk! :)

And I'm leaving in 1.5 hours for the Utah PKU Conference. I'm excited to go, I wanted to go to the one in Colorado last year but it was during the school year and I can't just drop everything to go to Colorado. Sigh. I have high hopes for it. It's going to last all day but I'm taking my notebook so I can post the highlights of it ASAP. There's going to be a PKU lunch. (I love the PKU buffets they always have) And I hope that I meet some PKU Mountain Region teen-friends.

*When 1 out of every 25,000 kids are born with PKU, friends tend to be scarce. I'm lucky to have my sister who also has it. :)*

Okay I told you it would be quick. And so this is my posting and running to get ready. :)