The other day I was talking to a bunch of my friends, and I'm not sure how it came up, but we were talking about my diet. They were going off about how limited it was, and how sorry they were, and how someday in heaven they were going to force me to eat all sorts of foods.
It was fine. I've had lots of conversations that mimic this one almost word for word. I just play along, no harm done.
In fact, I didn't think anything about it. Until...
One of my friends came up to me a few days later and said, "So I was researching your diet the other day..."
This particular friend hadn't really dealt with my diet that much. So when he said that, I was kind of shocked. I mean, who in their right mind would go and research a complicated metabolic disorder? (Oh right... that's you guys. Haha.)
No one (that's not related to me) has ever gone out of their way to research my diet.
I was touched. Really.
A conversation ensued that was quite intelligent. He had researched more of the technical, genetic, chemistry stuff. So we talked about that.
It's been on my mind ever since.
He's not an expert at my diet (but then again neither am I), but he actually tried. He was interested in it, and went out to look for stuff.
I didn't even know he was doing it.
I like talking about my diet, and informing the world that PKU exists. I really do. But it's something special when someone actually goes out of their way to learn something that complicated. (Now it helps that he actually likes chemistry so it was fun for him...)
But... it meant a lot to me.
I just wanted to thank you, my friend. You know who you are. :)
Wednesday, March 26, 2014
Wednesday, March 19, 2014
Too Hot, Too Cold, Just Right.
The other day Phenylade Essentials (my formula company that I follow on Face Book) posted a comic.
It's a comic that I can really relate to, if not all PKU'ers.
Imagine... you're on the go. Going to be gone all day. So you bring your medicine. No biggie. But it's a really hot summer day (and I really can't wait for those right now) and soon you're formula is disgustingly hot! EW!
Who likes drinking warm beverages that are SUPPOSED to be cool? Not me.
So what do you do? Some people freeze their medicine so this doesn't happen, some add more cold water, some add ice... I put mine in ice or preferably a fridge for a couple minutes. Not a long time, because I actually don't like my formula super cold either. I like mine "freshly made". So, I try not to wait too long before drinking it.
And if I need all my formula for the day... then I bring the second batch in powder form and make it in a water fountain.
You just do what you have to.
But I'm curious... How do you (PKU'ers) keep your formulas cool? And how do you (non-PKU'ers) keep other cool beverages cold?
It's a comic that I can really relate to, if not all PKU'ers.
Imagine... you're on the go. Going to be gone all day. So you bring your medicine. No biggie. But it's a really hot summer day (and I really can't wait for those right now) and soon you're formula is disgustingly hot! EW!
Who likes drinking warm beverages that are SUPPOSED to be cool? Not me.
So what do you do? Some people freeze their medicine so this doesn't happen, some add more cold water, some add ice... I put mine in ice or preferably a fridge for a couple minutes. Not a long time, because I actually don't like my formula super cold either. I like mine "freshly made". So, I try not to wait too long before drinking it.
And if I need all my formula for the day... then I bring the second batch in powder form and make it in a water fountain.
You just do what you have to.
But I'm curious... How do you (PKU'ers) keep your formulas cool? And how do you (non-PKU'ers) keep other cool beverages cold?
Tuesday, March 11, 2014
Scale Evolution
I think we can all agree that Technology has really changed in the last decade. New and improved versions of whatever device come out yearly (if not more often).
This includes the geekiest of equipment. Calculators? So complicated now. Don't believe me? Try operating a graphing calculator. (Sooooo many buttons.)
But this also applies to scales. Scales? Why would we be talking about scales?
Well, one of the things a PKU'er needs to do is weigh all their food (weighing food is especially important when it comes to medicine and during certain times of their lives)
... With a scale.
Over my lifetime I've owned 3 different scales. And it's funny because you can clearly see the technology development in each one. Here's what I mean:
Scale 1: The Triple-Beam Balance Scale.
This is the scale I've had the majority of my life. The concept is pretty simple, I'm sure you've all used one (think High School Chemistry). It's pretty clunky, and is hard to pack. But, the lack of batteries mean you never have to have a panic attack rush to the store, because you're out of batteries and don't have any of the same type in the house.
Scale 2: The Digital Scale
If the last scale's concept was easy, this one is even easier. You just place the food on it, and it weighs. This picture isn't the exact scale I used, mine had a few more buttons. But it's close. Easy to pack. But the batteries didn't last long at all. This one I used for a few years.
Scale 3: The Sleek Scale
The latest and greatest of the scales! It looks so sleek and sophisticated compared to the other two. The batteries don't die quickly (at least not so far). Of course it is run on those fancy circle batteries that are pretty expensive for something so small (I forget what they're called...). And it's easy to pack in shape, but the scale is SO easy to turn on that if you don't want to waste batteries you have to be careful packing it.
Just looking at the pictures you can see the influence technology has had on the scale design. And that, I present to you ladies and gentlemen is the EVOLUTION OF SCALES.
This includes the geekiest of equipment. Calculators? So complicated now. Don't believe me? Try operating a graphing calculator. (Sooooo many buttons.)
But this also applies to scales. Scales? Why would we be talking about scales?
Well, one of the things a PKU'er needs to do is weigh all their food (weighing food is especially important when it comes to medicine and during certain times of their lives)
... With a scale.
Over my lifetime I've owned 3 different scales. And it's funny because you can clearly see the technology development in each one. Here's what I mean:
Scale 1: The Triple-Beam Balance Scale.
This is the scale I've had the majority of my life. The concept is pretty simple, I'm sure you've all used one (think High School Chemistry). It's pretty clunky, and is hard to pack. But, the lack of batteries mean you never have to have a panic attack rush to the store, because you're out of batteries and don't have any of the same type in the house.
Scale 2: The Digital Scale
If the last scale's concept was easy, this one is even easier. You just place the food on it, and it weighs. This picture isn't the exact scale I used, mine had a few more buttons. But it's close. Easy to pack. But the batteries didn't last long at all. This one I used for a few years.
Scale 3: The Sleek Scale
The latest and greatest of the scales! It looks so sleek and sophisticated compared to the other two. The batteries don't die quickly (at least not so far). Of course it is run on those fancy circle batteries that are pretty expensive for something so small (I forget what they're called...). And it's easy to pack in shape, but the scale is SO easy to turn on that if you don't want to waste batteries you have to be careful packing it.
Just looking at the pictures you can see the influence technology has had on the scale design. And that, I present to you ladies and gentlemen is the EVOLUTION OF SCALES.
Tuesday, March 4, 2014
Return of the PKU'er
I'm back!!!!!
AND I'm still alive. AND I came up with some really good blog post ideas. So get ready!
For the past 5 weeks I've been doing my practicum. Which means, I've been basically a teacher's aide 3 days a week in a classroom. But I loved it.!!! And I miss the kiddos in my class a lot!
Anyways, as a teacher you still have to pay for school lunches. And it's generally what the kids are eating. But there is an added salad bar for teachers. So technically I could've had school lunch. I didn't want to pay for school lunches. I've always brought food from home, so the concept is just odd to me. Plus, it's more expensive. So, I never did school lunch.
I brought home lunches everyday. In fact, most of the teachers did. My first day I had an apple, a package of fruit snacks, pretzels, and a cup of applesauce. I pulled out my sack lunch from the fridge (literally in a plastic Smiths bag) and looked around.
Every other teacher had these elaborate lunches, whether they were leftovers, or salads, or microwave meals. And I had brought- essentially- a kids lunch. The kind I had brought to school from kindergarten until 12th grade.
That's when I decided I needed to put a little more effort into my lunches. From then on, I'd cook enough dinner to have leftovers for the next day's lunch. Or I'd throw together a salad before I went to bed.
It was actually really nice. I enjoyed being creative and having good solid lunches. It wasn't even hard. Lunch was just so much more enjoyable as a meal.
I guess you could say one of the things I learned at practicum, is that when you actually put effort into food... you enjoy it more.
Another thing I learned, is that eating in the teacher's lounge NEVER gets old. :)
AND I'm still alive. AND I came up with some really good blog post ideas. So get ready!
For the past 5 weeks I've been doing my practicum. Which means, I've been basically a teacher's aide 3 days a week in a classroom. But I loved it.!!! And I miss the kiddos in my class a lot!
Anyways, as a teacher you still have to pay for school lunches. And it's generally what the kids are eating. But there is an added salad bar for teachers. So technically I could've had school lunch. I didn't want to pay for school lunches. I've always brought food from home, so the concept is just odd to me. Plus, it's more expensive. So, I never did school lunch.
I brought home lunches everyday. In fact, most of the teachers did. My first day I had an apple, a package of fruit snacks, pretzels, and a cup of applesauce. I pulled out my sack lunch from the fridge (literally in a plastic Smiths bag) and looked around.
Every other teacher had these elaborate lunches, whether they were leftovers, or salads, or microwave meals. And I had brought- essentially- a kids lunch. The kind I had brought to school from kindergarten until 12th grade.
That's when I decided I needed to put a little more effort into my lunches. From then on, I'd cook enough dinner to have leftovers for the next day's lunch. Or I'd throw together a salad before I went to bed.
It was actually really nice. I enjoyed being creative and having good solid lunches. It wasn't even hard. Lunch was just so much more enjoyable as a meal.
I guess you could say one of the things I learned at practicum, is that when you actually put effort into food... you enjoy it more.
Another thing I learned, is that eating in the teacher's lounge NEVER gets old. :)
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