Monday, February 28, 2011

Hello to you too!

Reasons why I started this blog:
  1. To alert the world about Pheynlketonuria (noble huh?)
  2. To vent out my feelings about having PKU (or Phenyketonuria)
  3. To find other people with PKU (In Utah especially) become friends with them! :)
  4. To describe the life of a typical PKU teenager whose on her diet!
(I probably could list more.)


Okay venting my feelings wasn't the best choice of words. I'm okay with PKU, I like it most of the time. It's EVERYONE ELSE that has a problem with it. 2 reactions I get the most when I tell people about my PKU.
  1. I'm SOOOOOOOO sorry!!!! (Like its the end of the world if I can't eat meat!)
  2. Oh well this (insert food name here) is SOOOOO good! I'm sorry you can't have it!
Wait! I got ahead of myself. Most people don't even know what PKU is. Well... the medical dictionary definition is:
Phenylketonuria (PKU) can be defined as a rare metabolic disorder caused by a deficiency in the production of the hepatic (liver) enzyme phenylalanine hydroxylase (PAH). PKU is the most serious form of a class of diseases referred to as "hyperphenylalaninemia," all of which involve above normal (elevated) levels of phenylalanine in the blood. The primary symptom of untreated PKU, mental retardation, is the result of consuming foods that contain the amino acid phenylalanine, which is toxic to brain tissue.

That's a lot of words so to put it simply PKU is when a child is born with a metabolic disorder where they don't have the enzyme to break down phenylalanine into tyrosine. We have to eat less phenylaline because of it. Which means no meats, no dairy, and very little wheat. Basically we survive on fruits and vegetables. (I've never seen an obese PKU person)

Well that's all for now! I hope you'll become fans and I hope I accomplish what I set out to do! Blog to you later!

4 comments:

  1. I think you are an amazingly wonderful teenager!!! I'm excited about your new blog. I've always been your fan!! Love you!!

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  2. hooray! i put a link from my blog to yours. i am super happy you're doing this. go you!

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  3. You are awesome, Cassandra. I'm so proud of you!

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  4. I've never heard of PKU before, so I'm glad I can learn more about it. I don't have PKU, but I don't eat much meat or any dairy. I found a really good cookbook though, called Vegan with a Vengeance. Everything I've made from it is soooo yummy. Some of it uses wheat, but it might be worth looking at!

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