When I was little I always wanted to know someone besides my sister who had PKU. I wanted a pen pal. I person from another part of the world, who could understand me. I never did get one, though mom tried to look into it for me. I used to dream how it would be to write back and forth becoming instant best friends. Then suddenly meeting each other for the 1st time. It was like a story for me. A big fairy tale.
I went to camp PHEver, years later and made a bunch of friends. It was around then I guess when I realized that it's nice to have friends in another state. I wished... I still wish that somehow the PKU kids would get together and bond here like they have in Texas. (where camp PHEver is.) The hospital plans little kid parties. No one my age goes to them. I try to go just in case I meet someone my age there. I want friends with PKU. Friends in exotic places all around the world, and I want friends here. Right at home, that I can see more than once every other year.
I guess this post is call out. I didn't intend for it to be one. But nevertheless it is. If you have PKU comment. I want to know how many PKU'ers I'm actually writing to. I know not many (if any) will do this. There aren't that many PKU'ers in the world and no one really comments or goes along with the writer. I want to get to know you. I want to make a lot of PKU friends. That dream of a pen pal... never really died I guess. It just got tucked away for a while. I want input. I'll take anything but swearing. It's a bit lonely having PKU and not having anyone to constantly talk to. I'm glad I have a sister for that reason. But imagine just for a moment... having a whole network of friends that you can talk to. It would be the most amazing thing in the world.
